With a diagnosis of ACC, it’s critically important to receive treatment at an institution that has treated this disease and takes part in its research. Due to its rarity, not all doctors have experience with this disease and even fewer with pediatric ACC patients. Below is a list of physicians with experience treating ACC in (our ACCKT) pediatric patients/adults who were originally diagnosed as children. For physicians that treat adult ACC patients please find the ACCOI physician list found here which also includes international physicians.







PROTON RADIATION FACILITIES

 
 

If you are the parent of, or an adult patient originally diagnosed with ACC between the ages of 0-20, please consider taking part in our ACCKT Patient Registry. For more information, click here.