For additional information about ACC, the following organizations provide information, statistics, research and support for others diagnosed with ACC -typically adult onset -and other rare diseases.
The purpose of ACCOI is to create a worldwide community of ACC patients and supporters who share information, support and hope while working together to help develop a cure for ACC.
Adenoid Cystic Carcinoma Research Foundation supports research into adenoid cystic carcinoma that will accelerate the development of improved therapies and a cure for the disease.
NORD is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 260 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.
If you know of any additional reputable resources we’d love to have you share them with us.
