ACCelerating Hope Through Community, Care + Research
ACCKT stands for Adenoid Cystic Carcinoma Kids + Teens. We were created 2017 out of a mother's desperate need and frustration over the lack of information, research, healthcare protocol and appropriate support and resources for families and patients diagnosed with ACC in the pediatric/AYA age range (0-20 years old). Upon finding other families who had endured years or even decades without any of the prior, it was evident that there was a gap to fill for the patients and families facing a pediatric onset ACC diagnosis and journey.
“YOUR CHILD HAS CANCER; Adenoid Cystic Carcinoma.”
When you’ve heard those words we:
• Provide online support community for parents/caregivers
• Provide online support / networking community for AYA patients
• Fundraise for and participate in pediatric onset ACC research
• Communicate information on the most up-to-date medical information for our population
• Collect data about our population and maintain a patient registry of pediatric ACC patients
OUR TEAM
Since 2017, ACCKT has been committed to providing a dedicated community
space that provides peer support, collaboration and research for patients diagnosed with pediatric onset adenoid cystic carcinoma (ACC) and their families.